Tomorrow will mark the sixth week since my return home to San Francisco. When I look at the weeks in brief, it is busy and a struggle for balance and acceptance like this:
Week 1: jet lag and a very bad cold that kept me bedridden up to 36 hours per day. Barely responding to the flurry of calls, emails and requests to welcome me home from my loving community. Spend the waking time during the weekend planning a garden in the backyard and going to the garden centers to buy the supplies. This followed a conversation I had with Matt wherein I told him that I felt so much peace in the jungle, that I REALLY wanted to return to nature. He pulled out a financial spreadsheet and showed to me that without me having an income, there's no way to move to a place as nice as the one we're renting. So, we decided to bring the country into our fallow backyard.
Week 2: Taxes, scheduled doctor's appointments, researched an ongoing MS trial and went through the application process, considered what other jobs I could do part time, started 15 hrs/wk at my part time job. Sit on a restorative justice panel as a volunteer for community courts for a couple of hours. I notice that many of my MS symptoms have returned and I'm tired. Two job interviews - accepted one that is more social media, less talking. Feeling conflicted about going back to stuff that isn't attached to nature or personal connection. Meet a dear friend for lunch and buy some birthday presents for upcoming events of Matt's good friends. Join a Wed night women's song circle in the east bay. Drive 40 minutes south and spend the day with my mom - get signed onto her checking account after conversation about aging and planning ahead 'just in case'. Walk around city hall to sell Community Boards mediation services. A visit from a wonderful friend Magda and her daughter - drink wine at a French restaurant. Spend that weekend looking for planter boxes, washing dishes from our Burning Man Camp storage unit with camp cleanup day and go to Michelle's St Patrick's Day party where I sing with three guitarists for about 3 hours. I put a call out via FB to friends to refer MS people to me b/c I'm ready to talk to them and considering whether I should keep off medication a while longer...still considering whether I should do a trial instead (no drugs allowed to qualify).
Week 3: MS symptoms are worse, I have pain and stiffness, etc, but not even close to the first time around. Start my new job and continue my old one (tell the old one that I will leave after a big event we're having in June and the ED asks if I can just work one day a week - I'd like to, but it pays just $16/hour - how much is my health worth?), the new job isn't much human interaction and this makes me sad, but it's my only part-time option, I visit the Bouquets to Art exhibit at the museum near my house, get an MRI, plan my mom's surprise bday party with stepdad and sister, sing with women, get re-activated in my neighborhood board and start planning the NOPNA (my neighborhood) Spring Sidewalk Sale that I initiated last year. Hear from my Dr. that I have a new lesion in my brain - which is standard for MS. I seriously think I should start copaxone right away and tell the neurologist to order it. She does. We order a spinal MRI to see if there's anyting new there. I am demoralized. That weekend was a birthday party for a friend in the East Bay on Friday and again on Saturday night (we stay til 3am). All day Saturday and Sunday, I am tired. Still planning mom's surprise bday and scanning photographs to make a photo montage.
Week 4: See an osteopath and feel a lot better. Meet with a lady with MS who doesn't work and lives ayurvedically - she was ok w/copaxone, but started taking oral meds instead. She told me how to make injections not so bad everyday with secrets like ice right after penetration, etc. Make a flyer for the Sidewalk Sale and distribute it around the neighborhood. Interview a store owner in my neighborhood for the NOPNA Newsletter that I volunteer write for. Work three solid days for my two jobs (25 hrs/wk total) Meet my friend, the meditation teacher from the Brahma Kumaris and catch up - he tells me I really need to meditate to integrate what I had in India. Give a presentation in the Tenderloin for Community Boards. Start an acrylic painting class. Go to meditation that Friday and my gourmet group in the evening - cook food for the gourmet group and Sunday dinner that day. Saturday, I go to a symposium for integrating more with nature through Pachamama Alliance on Saturday (they're hiring and I want to check them out). Immediately drive to Santa Cruz for two nights with Tanya for her birthday and baby shower. Very nice. I have very low energy.
Week 5: The hardest week. Clean up Tanya's vacation rental and head home for two MRIs (one hour sitting in a capsule). Matt comes with me and asks what it's like for me. It's like floating in a capsule that makes a lot of noise. I cry inside b/c I hate having to do this again and again. I envision Dr. Ashwin in India talking about acceptance. I can't move, so tears start to tickle my ears. On April Fool's Day, I start off with injection training from the nurse. I cry again b/c I really haven't accepted this. I haven't accepted that I am sick and need to inject myself every day to avoid further lesions and relapses. She is kind and patient and funny. I couldn't have had a more gracious tutor - it's not so bad. I can do this. The next day, I show Matt in the morning how easy it is and something goes wrong when I pull out the needle - blood is streaming down my leg. It was kinda funny in a way. The bruise is still here now, but i haven't had any accidents since. I feel nauseated, depressed and not hungry - low energy all day. I write to the nurse and she tells me what I did wrong. That night, I finish scanning the photos for my mom's bday. I'm amazed at what a wonderful life my mom has led for 70 years and very much in love with her. I'm depressed and low energy the next day, but i have to go to work. The ED asks me if I'm feeling okay - I choke back tears and nod my head. I drive 30 minutes down to have birthday dinner with my mom, stepdad and uncle. I'm still not hungry and feeling very low energy and depressed. I try to fake it. My mom is happy. I love her. Take painting class again and I like it a lot. I went to the art store on Market and 6th for supplies (big sale) and on the way back to my car, I'm looking at all of the junkies and cracked out people and I relate to them. I'm limping a little with my left leg b/c I still don't fully bend my knee or lift my left foot (it's barely noticeable, but I was tired and my package was heavy and I hadn't eaten much, so was feeling pretty weak). I think about what needles do to one's soul and wonder if people think I'm a junky. I pass the free syringe supply place and the man working there nods and gives me a gentle smile. I wonder if he knows that I feel bruised and low and beaten up. I get the spinal MRI results and there's a new lesion in the same area as before, but on the right side. The large one on my left has shrunk. All of this is standard. Even though I'm tired and dejected and have been crying yet again, I go to Matt's fundraiser that evening bc it means a lot to him and leave him there to go to sleep at 10pm. On Friday, we meet with the neurologist and there's nothing new that she can tell me to feel any better, except that it's not that bad compared to other cases (one young boy had 20 new lesions in a month). New relapse remitting MS patients have new lesions every 3-6 months. At this stage, it's inflammatory - debilitation comes in 2-3 years. I'm glad I'm on copaxone finally and hope for the best -- it takes 6 months to take effect and has a 6-month build up rate. I can still get pregnant if I'm taking it. We'll see... On Friday, I apply for the Pachamama job, Skype with our friends in Dubai about MS and then stay up with Matt until 3am working on a birthday video for my mom and doubling the amount of photos from 120 to 250, while trying to put them in chronological order, as well as putting 27 of my favorites in frames that I had collected the day before from thrift stores. The next day, I am so tired and grumpy. My sister had asked me to go to Disneyland with she, my bro-in-law, my mom and my niece from Albuquerque. I know that I won't fare well walking in the heat all day with crowds everywhere and it makes me sad that I can't keep up with my own family. I cry all day long for no reason. I'm tired and feel like my eyes are pulling into my sockets b/c I'm feeling so down. We nonetheless film a video piece for my mom in our bathrobes and I look like shit for posterity. Oh well. We head down to Santa Clara to prep for my mom's surprise party. We arrive at 3:30 and I arrange flowers and the photos. The guests arrive and then mom, who is miraculously surprised. I kick into energy entertainment mode and MC the event with my sister. If I didn't have bags under my eyes, you never would've known how much I'd been crying all day long. Her party was just wonderful and my mom was sooo happy. It was beautiful. Just beautiful. We spend the night at my mom's house with my sister, bro-in-law and uncle. The next day, we watch the video, watch mom open her presents, walk through the park and have lunch. I decide that I don't have the energy to go with Matt to a flow arts show. Instead I stay at home and finally unpack fully from India - I just didn't have the time before - and organize the books in our library. Just as I finish, Matt returns home and we go to sleep.
Week 6: This week is better. I notified the trial on Monday that I wouldn't be participating and asked if I could be on a waiting list for Phase 2. They told me to check back in a year. I'm relieved. On Tuesday, I met with someone from my new job and she was so nice and personable that I gained inspiration to work with them that has been missing for me. Perhaps due to a disconnect, or perhaps b/c I've been so depressed. It's a start-up company, so there is constantly changes and I'm not always clear what they want from me, nor who to ask for clarity. I have a new campaign with peeps at community boards that I'm doing and it makes me happy. But still...all of this is social media and I really want human interaction and less typing. I write the article about the shop keeper and the SAFE Bike Program. I send the shopkeeper article to my District Supervisor's office and the Chief of Staff thanks me for all I do and tells me it makes a big difference.We go to dinner at our friends' new home in Oakland and it's lovely. Savannah reads my tarot cards for my question 'How do I integrate India in to my life back home?' She pulls a spread that shows a real hardship in the past with a lot of pain, followed by the Justice Card which has nature and peace and balance - that was India. The immediate present is one of swords and the future is seven swords. I automatically think of the syringes and how much I hate being sick. I tell her that my mornings in India, and for so long before that, have been sacred times for me and now they're ruined b/c I stab myself and then have to rest a while to avoid feeling sick. I haven't exercised, only meditated once and now even my mornings are ruined! She invites me not to do it first thing and to create a new relationship that the syringes are filled with medicine to make me better. Take back your mornings, she advises. I ask her if I can draw another card as to how to make it better. I draw a card with a man on it and she tells me to contact a male meditation teacher. The next day, I see Sister Sukanya from the Brahma Kumaris on the bus and tell her I want to see Jay to start meditating regularly. I go outside and enjoy nature before giving myself my medicine and feel a victory in taking back my morning. I skip my women's song circle and don't have the energy to go to my dear friend's bday party at a bar a few blocks from my house. Instead, I watch bad movies b/c I'm too tired from typing 25 hrs/week spliced within all of my activities, to read anything. Today, I went to my painting class, did an errand for Community Boards and returned home to garden a bit and then work some on social media. Tomorrow is lunch with another friend and efforts to do 8 extra hours of work due next week. Then Matt and I prepare for a Seder on Saturday night with 10 guests, followed by a garage sale with my neighborhood on Sunday. That evening, I'll go to Hound of the Baskervilles with my mom and niece and stay at her place until Tuesday.
Week 7 (to come): On Tuesday, we'll drive 3 hours down to San Luis Obispo to visit my sister and bro-in-law w/them until Wed. night when I fly home. We have plans to go sailing and hiking and just having fun together. I love visiting them in San Luis Obispo. Then, painting on Thursday and after working for 6 hours on Friday, my Burning Man camp is gathering 3.5 hours north in Ukiah. I love Cliff's ranch - it's beautiful and peaceful. We'll camp out outside and I will relax.
Week 8 (to come): Monday will be replacing a denture going all the way down to the root. How will MS make THAT different? And on Tuesday, my new part-time employer will go public and we're out of Beta. My contract with them is only until 4/22. I think they'll offer to keep me on and increase my hours to 20 hrs/week, but I'm not sure that I'll manage. It feels like I'm just holding on as it is. I promised Community Boards that I would work with them until June 6. I'm supposed to work 15 hrs/week with them, but I've spent just 10 hrs/wk with them in the past month. I have plans to go to a spa with a gf on Wed night after a day at work and hope to see Snataum Kaur in Marin on Thursday after painting class and a half day of Social Media work. That weekend, we're hosting friends from outta town for the weekend, including a gourmet group bbq on Sunday and Matt's fire spinning show on Saturday night.
Week 9: My birthday is on Wed. April 30. By the time I turn 41, I hope things slow down for me. I still have so many friends and family that want to see me and I simply don't have the time nor the energy to see them or talk on the phone with them. I can't feel bad about it. I'm trying to keep a balance in my life, but this pace seems too much. My sister tells me not to work and to write a book. A lot of people have read my blog and loved it. My dream is to create a conference for alternative ways to look at MS - a multi-day retreat. I wonder if I should quit the social media job, but it's my bread and butter at this point and I need to make money. At the very least, I'll stay with them and Community Boards at 35 hrs/week through May and the first week of June.
The future: May looks pretty clear, except for a gf visiting from Australia mid-May and then Matt and I will go to Europe for 6 weeks in mid June until July 7. A friend of mine is getting married. I see this as an opportunity to reset. I will leave both jobs behind me. Will coming home in July be a reset for me? I intend to use vacationing in Europe as an opportunity to explore that question. I hope it is relaxing. Looking back at this blog without returns for each week highlights how very packed my schedule has been. I prefer to have the next weeks more like this paragraph...short. : )
Immediate Goals: Wake up and mediate, write a paragraph and walk outside or do yoga a bit before taking my injection. I haven't reintegrated exercise or meditation. My diet hasn't been super strict. My arm hurts from so much typing bc of my two jobs and my volunteer work. The one thing I love love love is interacting with people and writing profiles about them. Can you live a life you love and make money? How will I get there. If any of you have any suggestions, PLEASE write to me at kmillich@gmail.com
I still trust in Grace and when I paint for 3 hours every Thursday and enjoy the garden in my backyard, I am reminded of peace. There are sooo many social opportunities that I've said no to since I've been home. I only attend about 30% of the events. That's a big change from before, but it still feels harried. I trust that meditation, exercise and diet will bring it all around again. I dare say that the right job will, too. BTW, the injections still feel like a wasp sting for 5 minutes, but I think I'm getting the hang of it and although my energy is low and i have permanent bags under my eyes (that I think is the result of copaxone), I think I'm getting used to it.
When I go to the ocean, I'm reminded of the ebbs and flows of life. Since I've been back, there has been a lot of love and activity and business. I'm trying to keep calm in it all, but it's different. So different. If you are a friend and I don't see much of you just now, please trust that we'll get together eventually. I just feel like I'm juggling 1000 balls with only two arms just now. This too, shall pass and then calmer tides shall prevail. Of that, I am determined to live in to...
This photo is of me after Matt's Dreamtime Circus Fundraiser during week 5. I'd just discovered that I had yet another new lesion in my spine a few hours earlier and I had been sad all day and still getting used to copaxone's aftereffects of depression and fatigue. Savannah painted my face when I asked her to make me look happy and vibrant instead of sad. She did a good job. San Francisco has its benefits. Savannah is certainly one of them. So are so many of my lovely friends...
Week 1: jet lag and a very bad cold that kept me bedridden up to 36 hours per day. Barely responding to the flurry of calls, emails and requests to welcome me home from my loving community. Spend the waking time during the weekend planning a garden in the backyard and going to the garden centers to buy the supplies. This followed a conversation I had with Matt wherein I told him that I felt so much peace in the jungle, that I REALLY wanted to return to nature. He pulled out a financial spreadsheet and showed to me that without me having an income, there's no way to move to a place as nice as the one we're renting. So, we decided to bring the country into our fallow backyard.
Week 2: Taxes, scheduled doctor's appointments, researched an ongoing MS trial and went through the application process, considered what other jobs I could do part time, started 15 hrs/wk at my part time job. Sit on a restorative justice panel as a volunteer for community courts for a couple of hours. I notice that many of my MS symptoms have returned and I'm tired. Two job interviews - accepted one that is more social media, less talking. Feeling conflicted about going back to stuff that isn't attached to nature or personal connection. Meet a dear friend for lunch and buy some birthday presents for upcoming events of Matt's good friends. Join a Wed night women's song circle in the east bay. Drive 40 minutes south and spend the day with my mom - get signed onto her checking account after conversation about aging and planning ahead 'just in case'. Walk around city hall to sell Community Boards mediation services. A visit from a wonderful friend Magda and her daughter - drink wine at a French restaurant. Spend that weekend looking for planter boxes, washing dishes from our Burning Man Camp storage unit with camp cleanup day and go to Michelle's St Patrick's Day party where I sing with three guitarists for about 3 hours. I put a call out via FB to friends to refer MS people to me b/c I'm ready to talk to them and considering whether I should keep off medication a while longer...still considering whether I should do a trial instead (no drugs allowed to qualify).
Week 3: MS symptoms are worse, I have pain and stiffness, etc, but not even close to the first time around. Start my new job and continue my old one (tell the old one that I will leave after a big event we're having in June and the ED asks if I can just work one day a week - I'd like to, but it pays just $16/hour - how much is my health worth?), the new job isn't much human interaction and this makes me sad, but it's my only part-time option, I visit the Bouquets to Art exhibit at the museum near my house, get an MRI, plan my mom's surprise bday party with stepdad and sister, sing with women, get re-activated in my neighborhood board and start planning the NOPNA (my neighborhood) Spring Sidewalk Sale that I initiated last year. Hear from my Dr. that I have a new lesion in my brain - which is standard for MS. I seriously think I should start copaxone right away and tell the neurologist to order it. She does. We order a spinal MRI to see if there's anyting new there. I am demoralized. That weekend was a birthday party for a friend in the East Bay on Friday and again on Saturday night (we stay til 3am). All day Saturday and Sunday, I am tired. Still planning mom's surprise bday and scanning photographs to make a photo montage.
Week 4: See an osteopath and feel a lot better. Meet with a lady with MS who doesn't work and lives ayurvedically - she was ok w/copaxone, but started taking oral meds instead. She told me how to make injections not so bad everyday with secrets like ice right after penetration, etc. Make a flyer for the Sidewalk Sale and distribute it around the neighborhood. Interview a store owner in my neighborhood for the NOPNA Newsletter that I volunteer write for. Work three solid days for my two jobs (25 hrs/wk total) Meet my friend, the meditation teacher from the Brahma Kumaris and catch up - he tells me I really need to meditate to integrate what I had in India. Give a presentation in the Tenderloin for Community Boards. Start an acrylic painting class. Go to meditation that Friday and my gourmet group in the evening - cook food for the gourmet group and Sunday dinner that day. Saturday, I go to a symposium for integrating more with nature through Pachamama Alliance on Saturday (they're hiring and I want to check them out). Immediately drive to Santa Cruz for two nights with Tanya for her birthday and baby shower. Very nice. I have very low energy.
Week 5: The hardest week. Clean up Tanya's vacation rental and head home for two MRIs (one hour sitting in a capsule). Matt comes with me and asks what it's like for me. It's like floating in a capsule that makes a lot of noise. I cry inside b/c I hate having to do this again and again. I envision Dr. Ashwin in India talking about acceptance. I can't move, so tears start to tickle my ears. On April Fool's Day, I start off with injection training from the nurse. I cry again b/c I really haven't accepted this. I haven't accepted that I am sick and need to inject myself every day to avoid further lesions and relapses. She is kind and patient and funny. I couldn't have had a more gracious tutor - it's not so bad. I can do this. The next day, I show Matt in the morning how easy it is and something goes wrong when I pull out the needle - blood is streaming down my leg. It was kinda funny in a way. The bruise is still here now, but i haven't had any accidents since. I feel nauseated, depressed and not hungry - low energy all day. I write to the nurse and she tells me what I did wrong. That night, I finish scanning the photos for my mom's bday. I'm amazed at what a wonderful life my mom has led for 70 years and very much in love with her. I'm depressed and low energy the next day, but i have to go to work. The ED asks me if I'm feeling okay - I choke back tears and nod my head. I drive 30 minutes down to have birthday dinner with my mom, stepdad and uncle. I'm still not hungry and feeling very low energy and depressed. I try to fake it. My mom is happy. I love her. Take painting class again and I like it a lot. I went to the art store on Market and 6th for supplies (big sale) and on the way back to my car, I'm looking at all of the junkies and cracked out people and I relate to them. I'm limping a little with my left leg b/c I still don't fully bend my knee or lift my left foot (it's barely noticeable, but I was tired and my package was heavy and I hadn't eaten much, so was feeling pretty weak). I think about what needles do to one's soul and wonder if people think I'm a junky. I pass the free syringe supply place and the man working there nods and gives me a gentle smile. I wonder if he knows that I feel bruised and low and beaten up. I get the spinal MRI results and there's a new lesion in the same area as before, but on the right side. The large one on my left has shrunk. All of this is standard. Even though I'm tired and dejected and have been crying yet again, I go to Matt's fundraiser that evening bc it means a lot to him and leave him there to go to sleep at 10pm. On Friday, we meet with the neurologist and there's nothing new that she can tell me to feel any better, except that it's not that bad compared to other cases (one young boy had 20 new lesions in a month). New relapse remitting MS patients have new lesions every 3-6 months. At this stage, it's inflammatory - debilitation comes in 2-3 years. I'm glad I'm on copaxone finally and hope for the best -- it takes 6 months to take effect and has a 6-month build up rate. I can still get pregnant if I'm taking it. We'll see... On Friday, I apply for the Pachamama job, Skype with our friends in Dubai about MS and then stay up with Matt until 3am working on a birthday video for my mom and doubling the amount of photos from 120 to 250, while trying to put them in chronological order, as well as putting 27 of my favorites in frames that I had collected the day before from thrift stores. The next day, I am so tired and grumpy. My sister had asked me to go to Disneyland with she, my bro-in-law, my mom and my niece from Albuquerque. I know that I won't fare well walking in the heat all day with crowds everywhere and it makes me sad that I can't keep up with my own family. I cry all day long for no reason. I'm tired and feel like my eyes are pulling into my sockets b/c I'm feeling so down. We nonetheless film a video piece for my mom in our bathrobes and I look like shit for posterity. Oh well. We head down to Santa Clara to prep for my mom's surprise party. We arrive at 3:30 and I arrange flowers and the photos. The guests arrive and then mom, who is miraculously surprised. I kick into energy entertainment mode and MC the event with my sister. If I didn't have bags under my eyes, you never would've known how much I'd been crying all day long. Her party was just wonderful and my mom was sooo happy. It was beautiful. Just beautiful. We spend the night at my mom's house with my sister, bro-in-law and uncle. The next day, we watch the video, watch mom open her presents, walk through the park and have lunch. I decide that I don't have the energy to go with Matt to a flow arts show. Instead I stay at home and finally unpack fully from India - I just didn't have the time before - and organize the books in our library. Just as I finish, Matt returns home and we go to sleep.
Week 6: This week is better. I notified the trial on Monday that I wouldn't be participating and asked if I could be on a waiting list for Phase 2. They told me to check back in a year. I'm relieved. On Tuesday, I met with someone from my new job and she was so nice and personable that I gained inspiration to work with them that has been missing for me. Perhaps due to a disconnect, or perhaps b/c I've been so depressed. It's a start-up company, so there is constantly changes and I'm not always clear what they want from me, nor who to ask for clarity. I have a new campaign with peeps at community boards that I'm doing and it makes me happy. But still...all of this is social media and I really want human interaction and less typing. I write the article about the shop keeper and the SAFE Bike Program. I send the shopkeeper article to my District Supervisor's office and the Chief of Staff thanks me for all I do and tells me it makes a big difference.We go to dinner at our friends' new home in Oakland and it's lovely. Savannah reads my tarot cards for my question 'How do I integrate India in to my life back home?' She pulls a spread that shows a real hardship in the past with a lot of pain, followed by the Justice Card which has nature and peace and balance - that was India. The immediate present is one of swords and the future is seven swords. I automatically think of the syringes and how much I hate being sick. I tell her that my mornings in India, and for so long before that, have been sacred times for me and now they're ruined b/c I stab myself and then have to rest a while to avoid feeling sick. I haven't exercised, only meditated once and now even my mornings are ruined! She invites me not to do it first thing and to create a new relationship that the syringes are filled with medicine to make me better. Take back your mornings, she advises. I ask her if I can draw another card as to how to make it better. I draw a card with a man on it and she tells me to contact a male meditation teacher. The next day, I see Sister Sukanya from the Brahma Kumaris on the bus and tell her I want to see Jay to start meditating regularly. I go outside and enjoy nature before giving myself my medicine and feel a victory in taking back my morning. I skip my women's song circle and don't have the energy to go to my dear friend's bday party at a bar a few blocks from my house. Instead, I watch bad movies b/c I'm too tired from typing 25 hrs/week spliced within all of my activities, to read anything. Today, I went to my painting class, did an errand for Community Boards and returned home to garden a bit and then work some on social media. Tomorrow is lunch with another friend and efforts to do 8 extra hours of work due next week. Then Matt and I prepare for a Seder on Saturday night with 10 guests, followed by a garage sale with my neighborhood on Sunday. That evening, I'll go to Hound of the Baskervilles with my mom and niece and stay at her place until Tuesday.
Week 7 (to come): On Tuesday, we'll drive 3 hours down to San Luis Obispo to visit my sister and bro-in-law w/them until Wed. night when I fly home. We have plans to go sailing and hiking and just having fun together. I love visiting them in San Luis Obispo. Then, painting on Thursday and after working for 6 hours on Friday, my Burning Man camp is gathering 3.5 hours north in Ukiah. I love Cliff's ranch - it's beautiful and peaceful. We'll camp out outside and I will relax.
Week 8 (to come): Monday will be replacing a denture going all the way down to the root. How will MS make THAT different? And on Tuesday, my new part-time employer will go public and we're out of Beta. My contract with them is only until 4/22. I think they'll offer to keep me on and increase my hours to 20 hrs/week, but I'm not sure that I'll manage. It feels like I'm just holding on as it is. I promised Community Boards that I would work with them until June 6. I'm supposed to work 15 hrs/week with them, but I've spent just 10 hrs/wk with them in the past month. I have plans to go to a spa with a gf on Wed night after a day at work and hope to see Snataum Kaur in Marin on Thursday after painting class and a half day of Social Media work. That weekend, we're hosting friends from outta town for the weekend, including a gourmet group bbq on Sunday and Matt's fire spinning show on Saturday night.
Week 9: My birthday is on Wed. April 30. By the time I turn 41, I hope things slow down for me. I still have so many friends and family that want to see me and I simply don't have the time nor the energy to see them or talk on the phone with them. I can't feel bad about it. I'm trying to keep a balance in my life, but this pace seems too much. My sister tells me not to work and to write a book. A lot of people have read my blog and loved it. My dream is to create a conference for alternative ways to look at MS - a multi-day retreat. I wonder if I should quit the social media job, but it's my bread and butter at this point and I need to make money. At the very least, I'll stay with them and Community Boards at 35 hrs/week through May and the first week of June.
The future: May looks pretty clear, except for a gf visiting from Australia mid-May and then Matt and I will go to Europe for 6 weeks in mid June until July 7. A friend of mine is getting married. I see this as an opportunity to reset. I will leave both jobs behind me. Will coming home in July be a reset for me? I intend to use vacationing in Europe as an opportunity to explore that question. I hope it is relaxing. Looking back at this blog without returns for each week highlights how very packed my schedule has been. I prefer to have the next weeks more like this paragraph...short. : )
Immediate Goals: Wake up and mediate, write a paragraph and walk outside or do yoga a bit before taking my injection. I haven't reintegrated exercise or meditation. My diet hasn't been super strict. My arm hurts from so much typing bc of my two jobs and my volunteer work. The one thing I love love love is interacting with people and writing profiles about them. Can you live a life you love and make money? How will I get there. If any of you have any suggestions, PLEASE write to me at kmillich@gmail.com
I still trust in Grace and when I paint for 3 hours every Thursday and enjoy the garden in my backyard, I am reminded of peace. There are sooo many social opportunities that I've said no to since I've been home. I only attend about 30% of the events. That's a big change from before, but it still feels harried. I trust that meditation, exercise and diet will bring it all around again. I dare say that the right job will, too. BTW, the injections still feel like a wasp sting for 5 minutes, but I think I'm getting the hang of it and although my energy is low and i have permanent bags under my eyes (that I think is the result of copaxone), I think I'm getting used to it.
When I go to the ocean, I'm reminded of the ebbs and flows of life. Since I've been back, there has been a lot of love and activity and business. I'm trying to keep calm in it all, but it's different. So different. If you are a friend and I don't see much of you just now, please trust that we'll get together eventually. I just feel like I'm juggling 1000 balls with only two arms just now. This too, shall pass and then calmer tides shall prevail. Of that, I am determined to live in to...
This photo is of me after Matt's Dreamtime Circus Fundraiser during week 5. I'd just discovered that I had yet another new lesion in my spine a few hours earlier and I had been sad all day and still getting used to copaxone's aftereffects of depression and fatigue. Savannah painted my face when I asked her to make me look happy and vibrant instead of sad. She did a good job. San Francisco has its benefits. Savannah is certainly one of them. So are so many of my lovely friends...






